As of last week Lucy is officially DRUG FREE!!
It is a true miracle. It was exactly 1 year ago that Lucy was diagnosed with a severe form of epilepsy (Lennox Gastaut Syndrome) and the prognosis was not very good to say the least. We were desperate. And then Aunt Liz in her endless efforts to help Lucy found the answer on a web site!
For the last 7 months, Lucy has been seizure free and we have been slowly reducing her anti-convulsants in hopes that one day we could eliminate them all together! That day came and we were beyond nervous. We stopped her last dose last week and everything has been great since! No eye rolling, jerks, drop seizures, or staring spells. Thank God!!!
It has been a long 2 1/2 years and Charlie and I never thought we would be able to stop the endless medications! I can not say enough about how wonderful this Ketogenic Diet is! It truly saved Lucy's brain!
Thank you Aunt Liz . We are FOREVER thankful! Now we can only hope and pray that Lucy's mind can heal and she will show some signs of development. Thank you so much for ALL your support and prayers during this struggle. We are very lucky to have you all in our life!!!
With our Love,
Charlie, Jenny, Hank and Sweet Lucy