02/09/2014

#106 Are there online parent support groups or specific seizure type support groups where keto is discussed?

The Charlie Foundation's Facebook page has a Teen Support Group which is moderated by Dawn, mom of Charlotte, and Emily, a college student (on the diet).

Fay and Leslie are aware of these Facebook groups:

Ketogenic Parents Rocks

Diets for Epilepsy

Dravet Dietary Approaches 

There is also a ketogenic diet support group on Yahoo

 

Fay offers this resource: My son, Scott, was diagnosed with Lennox Gastaut Syndrome at age 3 so I have always been active with the yahoo LGS email list and with the Facebook LGS Foundation group.